Join our Facebook Support Group (which is private), or visit our Facebook Page, its loaded with information about CPH and Cluster headaches. Please click the link and sign up today.
Here you can upload a photo of yourself, and write about your CPH. Questions are welcomed too. Its a place for us to learn about CPH, vent when we are suffering, and encourage one another. We cant wait to “meet” you. — Gina
Lynn
-With a diagnosis of CPH and an inability to take Indocin, I am interested in the support group.
Thanks,
Lynn
gina
-The support group can be found on facebook. Its called Rare Headache disorders Support Group AKA Headache Warriors. We look forward to hearing from you Lynn. Thanks, Gina
Christine
-I am a 61 year old female and have had cph for over 30 years. I cannot tolerate indo. I need to know if anyone has had any results with other meds. I need a support group-as the years go by I feel totally disabled with this evil syndrome.
gina
-Hello Christine, my name is Gina. There are other medications that people take,but, I am not sure how well they work in comparison to Indo. One of them is Topamax. Come and join our support group on Facebook. click the link on this blog page and it should take you there. If it doesn’t work then let me know so I can fix it. I am one of the admins on the support group,and, I love it. It’s so fulfilling knowing that I have those people to connect with. Hope to find you there. Thanks for reading my blog. I hope I was able to encourage you in some way. – Gina
gina
-Hi Lynn, I just now saw your comment. I get alot of spam on this blog site so, it’s hard to find the real people in the mix of all the ridiculous comments that are there. If you havn’t already ventured over to Facebook and joined our support group, then,hurry and come! It’s now called Chronic paroxysmal hemecrania and cluster headaches conquerer. Hope to see you there. – Gina
conquerors
gina
-Its actually Paroxysmal hemecrania and Cluster headache Conquerer support group. That way it’s easier to find it on Facebook. – Gina
gina
-If the link doesnt work, then you can find it on Facebook by searching for Paroxysmal Hemicrania and Cluster headache Conqueror . That way you can join with us and not feel so alone. Hope to see you there. – Gina