In the spring of 1999,While caring for my boys, I had my first headache attack. It felt like lightening bolts shooting through my left eye. My eye was watery afterwards, and my nose was a little runny. Soon, the attacks became more frequent (both sides of my head, and on all areas), and I learned to live with them. After about a year, they went away and were forgotten. Then, in 2003, They came back with a vengeance. I suffered for a little over 2 years, and then saw a Neurologist. She thought I had Cluster Headaches. So, I took meds for it, but it did not help. So, In April of this year(2007), I got a second opinion. he sent me to have an MRI, Which enabled him to rule out all other causes of head pain. That left me with 2 options: Cluster Headaches and Paroxysmal Hemicrania. My symptoms matched Paroxysmal Hemicrania more than Cluster Headaches, so my Neurologist had me take the only known medicine that helps with the symptoms of Paroxysmal Hemicrania. It is called Endomethacin. Side affects are extreme exaustion and dizziness. So, now, I am not sure which I would rather deal with; the headaches, or the side affects from the meds. While taking the meds, I feel so normal inside my head, but I am tired all of the time. All I want to do is sleep. I am dizzy too. Sometimes its worse than others. when I am not on the meds, I have between 2 and 30 attacks every day. They last between 30 seconds, and 2 minutes. Ocasionally, they can last several hours. Sometimes the pain is so excruciating that I just want to pop my head so it will feel better.The pain is like thunder and lightening inside my head. It Rumbles and shoots and aches–even down my neck. It interupts my life. I homeschool my 4 sons, andwe are in Martial Arts 6 days a week. I need my head to feel normal. If I take my medicine, then I have a hard time teaching my sons, and when I do Martial Arts, I end up tripping all over the place because of the dizziness. Hmmmmm…..I would like to talk to somebody else in the world who is in my same situation so I can find out how they balance their life and meds.
There are 2 forms of this disease: chronic and seasonal. I have the chronic form, which means that I get them all year around. I take 50 milligrams of Endomethacin 3 times a day. I think I will cut out the afternoon dose, and that will give me a few hours of not feeling tired and dizzy. That way I will be able to get some stuff done with my boys, and we could still attend Martial Arts. If this works, then I will report it in a few days.