New pathways and new friends

Paroxysmal Hemicrania, whether Chronic or Episodic, can and does find new pathways.  When I was 7, it started in my eye, now, at the age of 42, it is in both eyes, all over my head, my ears, face, throat, neck, back, and shoulders.  This last attack was hideous!  It was everywhere at all different …

New medicine

I went years without treating my CPH because I cannot tolerate the side effects from Indomethacin.  In December of 2013, it became unbearable.  So, in January of this year, I went back to my Neuro and this time he gave me Celebrex.  I was scared, but, desperate for relief.  It was an answer to prayer!  I …

CPH is is my Nemesis! Heres the latest on my battle

Oh man!  I have been suffering so badly for 4 days now.  Usually, I will endure the Lightning attacks followed by a couple of days of constant pain every couple of weeks, but, these past 2 weeks have given me an abundance of sharp, painful lightening attacks that increased every day.  Now, these last 4 days …

Farewell to sugar

I have decided that sugar is my enemy in the truest form.  August 3rd, 2011, I made a bold decision to stop eating sugar.  Not just sugary sweets, but white flour which converts to sugar rather quickly.  Since doing so, my headaches have decreased dramatically!  It has been over two and a half months, and, …

Join our support group on facebook

Join our Facebook Support Group (which is private), or visit our Facebook Page, its loaded with information about CPH and Cluster headaches.  Please click the link and sign up today. Here you  can upload a photo of yourself, and write about your CPH.  Questions are welcomed too.  Its a place for us to learn about CPH, …

CPH and EDS connection?

I don’t really know if my CPH has eased up or if I have become tolerant to the pain. I still suffer from it on a daily basis but they don’t seem to be too bad. The short attacks anyway. The long episodes that last hours or days are still horendous. Each time I get …

CPH has increased again!

They are really bad right now!  These attacks are distracting me again.  For quite a while, they were somewhat manageable, but for the past month, they have wreaked havoc on me.  Today, I could feel it in my shoulder, and in my jaw.  I sometimes get hotflashes and slightly sweaty from them.  It is so …

life with CPH

I haven’t really written anything in a while.  Its because nothing has changed.  I wish I could say that I found a cure and that its simple and easy with no side effects, but that hasn’t happened yet.  I know there is something out there.  There’s gotta be.  I wish there were more people searching.  …

interrupted conversations

Amazingly, the last 6 months have been easier than the last 6 years!  I still get the attacks, but not as much as I was.  This is normal.  They will increase again, but I am enjoying this relief while it lasts.  I get about 2 to 12 lightning attacks a day.  Two weeks ago, I …