New medicine

I went years without treating my CPH because I cannot tolerate the side effects from Indomethacin.  In December of 2013, it became unbearable.  So, in January of this year, I went back to my Neuro and this time he gave me Celebrex.  I was scared, but, desperate for relief.  It was an answer to prayer!  I …

CPH is is my Nemesis! Heres the latest on my battle

Oh man!  I have been suffering so badly for 4 days now.  Usually, I will endure the Lightning attacks followed by a couple of days of constant pain every couple of weeks, but, these past 2 weeks have given me an abundance of sharp, painful lightening attacks that increased every day.  Now, these last 4 days …

Farewell to sugar

I have decided that sugar is my enemy in the truest form.  August 3rd, 2011, I made a bold decision to stop eating sugar.  Not just sugary sweets, but white flour which converts to sugar rather quickly.  Since doing so, my headaches have decreased dramatically!  It has been over two and a half months, and, …

Join our support group on facebook

Join our Facebook Support Group (which is private), or visit our Facebook Page, its loaded with information about CPH and Cluster headaches.  Please click the link and sign up today. Here you  can upload a photo of yourself, and write about your CPH.  Questions are welcomed too.  Its a place for us to learn about CPH, …

I don’t really know if my CPH has eased up or if I have become tolerant to the pain. I still suffer from it on a daily basis but they don’t seem to be too bad. The short attacks anyway. The long episodes that last hours or days are still horendous. Each time I get …

CPH has increased again!

They are really bad right now!  These attacks are distracting me again.  For quite a while, they were somewhat manageable, but for the past month, they have wreaked havoc on me.  Today, I could feel it in my shoulder, and in my jaw.  I sometimes get hotflashes and slightly sweaty from them.  It is so …

interrupted conversations

Amazingly, the last 6 months have been easier than the last 6 years!  I still get the attacks, but not as much as I was.  This is normal.  They will increase again, but I am enjoying this relief while it lasts.  I get about 2 to 12 lightning attacks a day.  Two weeks ago, I …

My headaches are slowing down

The last really bad headache that I had was in November 2008.  They have slowed down a lot.  I get 2 maybe 3 small attacks a day but that is it.  I am so happy!  I am able to get a lot more done every day because I don’t have to stop and wait for …

feeling better

Yes, I actually went TWO WHOLE DAYS without any attacks!  Amazing but true!  There is definitely a seasonal change in me.  They decreased this time last year too, so, if it goes the same way as last year, then, they will stay at a minimum until about October.  Lovely!!!  I have over the last year, been able …